In mid-July we got the diagnoses that our oldest child was autistic and considered at a level 2. First of all what the hell does all that really mean? Let me go back a few months to when we started noticing something was different about our beautiful baby boy.
My son was born 6 weeks premature but we where lucky and he didn’t have to stay more then a week to get his levels to what they needed to be and up to 16/17 months old he had been hitting all his milestones normal and some he seemed to be overachieving on. Then it was like the lights where switch off, he was still our sweet boy and would cuddle with us… but began to lose his words. He no longer called out for me, his father, his grandfather or aunt. He no longer seemed to respond to his name or nicknames like he had been. Maintaining eye contact seemed to make him scared and he would turn away and he still had yet to walk without holding onto things.
We had just brought home our daughter and I chalked it up to having to adjust to not being the only child anymore and having to share mommy and daddy’s attention. But in my heart I knew something wasn’t right. I noticed he would wiggle his fingers and flap his hands when he was excited, spin in circles, rock back and forth, shack his head and hit himself even.
Finally after many back and forth conversations with my husband I spoke with our pediatrician and asked to have him looked at, she suggested he get seen by a developmental specialist. A month later we had our answer he was autistic… being our first child it broke my heart at first. Did I somehow cause this? Was I to blame for him being this way? But then I told myself he is still my beautiful baby boy it’s just he does things a little differently. Sure there are days I could do without the consent shrieking and biting; and I would honestly give anything to be able to understand when he needs something since he is still nonverbal and has a hard time communicating what he wants. Eating is hard as well with him being on the spectrum he is really picky even by toddler standers and there are days he just refuses to eat.
I have major anxiety and depression and days like today get to me. I love my family with all my heart but, sometimes I’m barely holding it together. So, when my husband came in from working on the car and I had been with the kids nonstop (my son squealing at the top of his lungs for an hour and my daughter crying cause she needed a nap and he was keeping her up) and he said I’m tired I want to take a nap. I didn’t say what I wanted to when he asked if that was ok. I said, “I’m fine…”
